Contact details:

Sanfilippo Initiative e.V.
Praunheimer Landstr. 156
60488 Frankfurt am Main
Tel.: 0 157 706 878 53

Board of Directors

Krzysztof Kuschidlo (Chairman)
Malgorzata Kuschidlo (Deputy Chairman)
Antonina Waszczuk (Treasurer)

Registration Court: Local Court Frankfurt am Main
Registration number: 15795

We are member of:

EURORDIS – EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people living with rare diseases in Europe.


Bundesverband Deutscher Stiftungen – Bundesverband Deutscher Stiftungen represents the interests of more than 21,000 foundations in Germany. With more than 4,000 members, which represent three quarters of foundation capital in Germany, we are the largest and oldest foundation association in Europe.