EMAIL US AT info@sanfilippoinitiative.org
DONATION

GIVE DONATION

Support worldwide efforts to end Sanfilippo, find a cure and make this devastating disease a history.

BECOME A VOLUNTEER

Join us, together we will make impact and rescue thousands  children sentenced to death by Sanfilippo.

ORGANISE AN EVENT

Organise and event to raise funds and awareness about Sanfilippo and similar rare conditions.

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OUR MISSION

OUR GOAL IS TO FIND A CURE FOR DEVASTATING (SO FAR) FATAL INFANT DISEASE SANFILIPPO (MPSIII).

NEWS

Sanfilippo Initiative

2 weeks 4 days ago

Ein sehr guter Artikel über Familien die von Sanfilippo betroffen sind

#CureSanfilippo

Parents dream of a cure for Sanfilippo syndrome, a childhood dementia that comes with a 'death sentence'

Like Alzheimer's disease in older adults, the rare degenerative disease impacts cognitive ability of the very young

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Sanfilippo Initiative

Sanfilippo Initiative

2 weeks 6 days ago

Heute ist der internationale MPS Awareness Day. Es gibt immer noch keine Heilung für MPS III (Sanfilippo) Kinder. Die Leben der MPS Kinder ist wichtig.

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Sanfilippo Initiative

2 weeks 6 days ago

Alles Liebe zum Muttertag, insbesondere für die Mütter der Kinder mit "special needs" wie Sanfilippo ❤️❤️❤️

50 Mums | 50 Kids | 1 Extra Chromosome

The mums in this video and the dad who created it met online and got together to show the world just how ordinary and fun life with the condition is and how ...

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Sanfilippo Initiative

Sanfilippo Initiative

3 weeks 20 hours ago

Im Zusammenhang mit dem 15. Mai, dem Internationalen MPS Awareness Day (MPS - Mukopolysacharydosen, MPSIII Sanfilippo), posten wir die wichtigsten Fakten über die Sanfilippo-Krankheit. Was

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Sanfilippo Initiative

Sanfilippo Initiative updated their cover photo.

1 month 1 week ago
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