OUR MISSION
OUR GOAL IS TO FIND A CURE FOR DEVASTATING (SO FAR) FATAL INFANT DISEASE SANFILIPPO (MPSIII).
NEWS
Ein weiterer Sanfilippo Engel - Loralei ist nur 8 Jahre alt geworden...fly high Loralei, frei von Sanfilippo 💔
Sanfilippo Awareness - main early symptoms The main symptoms commonly associated with Sanfilippo syndrome: 1. Coarse facial features: Including a prominent forehead, thickened eyebrows, broad