EMAIL US AT info@sanfilippoinitiative.org
DONATION

GIVE DONATION

Support worldwide efforts to end Sanfilippo, find a cure and make this devastating disease a history.

BECOME A VOLUNTEER

Join us, together we will make impact and rescue thousands  children sentenced to death by Sanfilippo.

ORGANISE AN EVENT

Organise and event to raise funds and awareness about Sanfilippo and similar rare conditions.

.

OUR MISSION

OUR GOAL IS TO FIND A CURE FOR DEVASTATING (SO FAR) FATAL INFANT DISEASE SANFILIPPO (MPSIII).

NEWS

Sanfilippo Initiative

2 days 22 hours ago

Am 7 und 08 Juli findet eine Online Konferenz zu aktuellen Sanfilippo Themen mit Forschern als Speaker aus der ganzen Welt (insgesamt gibt es 40

4
View on Facebook
Share
Sanfilippo Initiative

Sanfilippo Initiative

1 week 5 days ago

Liebe Grüße aus Küste Dänemarks #FriendsVersusSanfilippo #CureSanfilippo

5
View on Facebook
Share
Sanfilippo Initiative

Sanfilippo Initiative updated their cover photo.

1 month 1 week ago
11
View on Facebook
Share
Sanfilippo Initiative

Sanfilippo Initiative

1 month 1 week ago

Im Zusammenhang mit dem 15. Mai, dem Internationalen MPS Awareness Day (MPS - Mukopolysacharydosen, MPSIII Sanfilippo), posten wir die wichtigsten Fakten über die Sanfilippo-Krankheit. Was

6
View on Facebook
Share

Sanfilippo Initiative

2 months 1 week ago

Der kleine Lucas wurde nur 7 Jahre alt 😥
Fly high Lucas 💜, free of Sanfilippo

8
View on Facebook
Share